Here you will find the most amazing group of people. All with their own story to share, all surviving the challenges of everyday life! Read their stories, be inspired.
My name is Lisa Helms and I have the fabulous opportunity to give you a peek into the world of someone living with an autoimmune/neurological disorder of whatever sorts. I personally got tagged with Transverse Myelitis and Multiple Sclerosis. It has flipped my, once very active lifestyle, upside down but I refuse to let is keep me down! This blog is designed to specifically address all the crap people don’t understand about people living with these ridiculous diseases. Whether your living with it yourself, or are trying to get a better idea of what in the world is going on with your loved one, I hope you’ll find some answers.. and maybe a few laughs, on my page.
I’m Melissa, a 27 year old Canadian girl living in downtown Toronto. This blog is going to follow me in both my travels, and my daily journey living with Multiple Sclerosis. You can expect to read an honest account of what it all means to me, with a bit of sarcasm, and the occasional emoticon thrown in for good measure!
I’m Marc, a 51-year-old male, living in New York City with my lovely and wonderful wife Karen. Diagnosed with Primary Progressive Multiple Sclerosis in March of 2003, I now require a wheelchair to get around the city. I like to drive the wheelchair at full speed, thus the moniker “Wheelchair Kamikaze”. I’ve managed to rig a camera to my chair, so I’m able to take videos and still photos from the unique vantage point of a wheelchair, which I intend to post here. Before getting sick, I was the Director of DVD Production for one of the major international music companies. Yes, I was once a member of the Evil Empire… Prior to my enlistment in the Evil Empire, I worked as a video producer and editor. I grew up in New York City, and spent the 1980s in Boston (college and postcollege rock ‘n roll craziness). During the 1990s, I lived in South Florida, until I woke up one morning and realized I was living in South Florida, came to my senses, and moved back to New York. I hope you like my blog.
What started as a harmless question, “Why isn’t there a My Cancer Secret?” spawned a new effort to offer support and safety for people looking to share their chronic disease secrets. A safe place to share your multiple sclerosis secrets. No judgement. No shame. Merely catharsis through honesty.
Sue is an author, speaker, a certified holistic health care practitioner, and the director of program development for the Fibromyalgia and Chronic Pain Center at California State University, Fullerton. She is a Fibromyalgia Editor for ProHealth.com, as well as a Patient Advocate and the Fibromyalgia Expert for the Alliance Health community of health conditions website.
My name is Meagan Freeman, and I am a mother of 6, family nurse practitioner, and MS patient from Northern California. This blog is a place to exchange ideas, feelings, and experiences regarding life with multiple sclerosis. I was diagnosed in 2009 with RRMS, and I find that sharing my experiences is therapeutic, both for myself and for readers. My goal is to ensure that no MS patient ever feels lost and alone with this illness, and to create a virtual support system. I welcome feedback and comments, and I would love to hear from you (contact information is in the “contact me” section.) I am happy to share guest blogs if anyone would like to send me personal blog posts on the topic of MS.
My name is Julie, I created Counting My Spoons as a way to inform and inspire others living with (often invisible) chronic illnesses, including Fibromyalgia, Chronic Fatigue Syndrome, Lupus, Lyme, Endometriosis, Migraines, Cluster Headaches, MS, and many others. Many of the symptoms of these disorders and diseases overlap, often making diagnosis difficult.
Dave, 47, is the founder of www.ActiveMSers.org, a website designed to help, motivate and inspire those with multiple sclerosis to stay as active as possible—physically, intellectually and socially—regardless of physical limitations. Established when Dave was diagnosed in 2006, ActiveMSers has helped hundreds of thousands of people with MS from around the world through its encouraging website, blog, Twitter feed, Facebook page, and discussion forum. His motto: Be active, stay fit and keep exploring!
In 1995 I was diagnosed with multiple sclerosis. MS put a speed bump in my plans to go back to work as a counselor when my kids were in school. It’s been an amazing learning experience. I am now a full-time online network marketer. Everyday is filled with joy and accomplishment. Life doesn’t look like I imagined it, yet I enjoy every day!